Ever feel badly that you don’t feel badly? 

If you’ve been wondering where I’ve for the past year+, well, I’ve been here. I would think about this blog often and think of ways to write about what’s been happening. In fact I have about 20 drafts waiting for me to finish and post. *sigh*

So what’s been happening? Nothing much on the LUPUS FRONT is what!

I haven’t have a major flare in about a year. Sometimes, I don’t even feel like I have lupus because I’ve NEVER gone so long without having issues. Not to say that I haven’t had issues…not at all, but I’ve been blown away by how well I’ve been doing lupus-wise. So…I feel guilty for neglecting my blog, my Twitter account and all of the lupus-related things that are so important to me as far as being able to share my experiences and possibly help even one person with some of the issues that they may be facing.

Let’s rewind a teeny bit:

June 2016- I mentioned that my health seemed to do a lot better after my (mysterious, I know) “life change“. I’ve basically experienced such good health since then that I was able to focus on other important life projects.  I decided to do lots of things that I couldn’t have imagined doing in my younger life when my lupus was very much active.

I continue all the things I mentioned in my June 2016 post:

• Practising daily meditation
• Being present–I read another book: The Power of Now
• reconnecting with friends

You could say that these have led me to enjoy a kind of social life that I never had before.

I have been out and about…A LOT! I have been able to stay out later and not feel too terribly fatigued or achy afterwards. Once I realised this was a NOT a fluke, I upped my socialising.  While I always remain aware of my energy and how I should pace myself (i.e.: not wearing crazy uncomfortable shoes and going to places that had seating etc), I found myself able to stay out longer and enjoy my surroundings and the people I am with.

Maybe all of this good health is an outward manifestation of my generally more open outlook on life.  So good…

But now,

I visited my rheumatologst recently for my regular 3-month checkup. I had been feeling quite fatigued to I already knew I was flaring. I had been flaring at the previous 3-month visit and went back on Benlysta (I will post something about this soon). I was a bit disheartened that I had been doing so well but for 6 months I was on a downward trend.