It has been a long time since I’ve posted to my blog, and it is not for lack of things happening. That is not the case, at all. There has been A LOT going on in the background as it relates to dealing with lupus. As you may know, there is no cure for lupusContinue reading “Revisit, revise, reset, renew (?)”
Tag Archives: Lupus
Speaking of family
Having children is more complicated for those of use who have chronic illnesses…
Can a bad thing can be the best thing for your health?
Again, it’s been a long time since I’ve posted here. My emotional energy has been so depleted for the past few months that I could never bring myself to share “doom and gloom” with you. In my last post, I shared a bit about a life change I was going through and trying to figure outContinue reading “Can a bad thing can be the best thing for your health?”
I’m enjoying being involved in the bigger picture
Wow. I think it might be a month or so since my last post. While nothing really MAJOR has happened with me or my health, I’ve been trying to get more involved in lupus/patient events. I’m very interested in (obviously) lupus awareness and education, but I am also generally interested in making patient’s lives better.Continue reading “I’m enjoying being involved in the bigger picture”
Employment by lupus- my story
I’ve learned different ways to manage my lupus while working, and I want to share my tips with you.
the invisible handicap and parking ‘shaming’
There was an article recently of a woman who has lupus, which makes her eligible to apply for a handicap parking tag/spot. She received a nasty letter on her windshield from someone who, thinking they were a good citizen, shamed her for stealing handicap spots from people who need them. The woman who received this note andContinue reading “the invisible handicap and parking ‘shaming’”
sometimes you need to slow down to move fast
I tend to walk fast. Maybe it is part of my ‘location DNA’ but even when I can’t move fast, I try. I’m a big-city girl, having grown up in Brooklyn NY, and I can’t imagine living anywhere else. Coming from NYC, everything moves fast. It really does. I rarely notice it unless I’m somewhereContinue reading “sometimes you need to slow down to move fast”
