Ever feel badly that you don’t feel badly? 

If you’ve been wondering where I’ve for the past year+, well, I’ve been here. I would think about this blog often and think of ways to write about what’s been happening. In fact I have about 20 drafts waiting for me to finish and post. *sigh* So what’s been happening? Nothing much on the LUPUSContinue reading “Ever feel badly that you don’t feel badly? “

Revisit, revise, reset, renew (?)

It has been a long time since I’ve posted to my blog, and it is not for lack of things happening. That is not the case, at all. There has been A LOT going on in the background as it relates to dealing with lupus. As you may know, there is no cure for lupusContinue reading “Revisit, revise, reset, renew (?)”

How I got started with Benlysta

I’ve been on so many medications to treat my lupus over the years that I really felt I was running out of options. In 2012 it had already been a little over two years that I’d had more difficulties with my lupus than had been the case in recent years. There’d been no relief from pain andContinue reading “How I got started with Benlysta”

Giving Benlysta a chance

I got my Benlysta infusion this week. I’ve been on it for about three years and it’s been working out really well for me. What made me excited this week is there were two other people receiving the treatment in the infusion room with me. It’s exciting because we’re getting more doctors to prescribe and more patients to takeContinue reading “Giving Benlysta a chance”