Before I begin…I am not a doctor or nutritionist. I am simply sharing my experience and my own quest for information that might help tame the wolf! Read on… 🙂 I started a gluten-free diet this week. I came across several articles, a webinar and other lupus patients about a gluten-free diet helping to lessen inflammation.Continue reading “Going gluten-free”
Category Archives: lupus
How I got started with Benlysta
I’ve been on so many medications to treat my lupus over the years that I really felt I was running out of options. In 2012 it had already been a little over two years that I’d had more difficulties with my lupus than had been the case in recent years. There’d been no relief from pain andContinue reading “How I got started with Benlysta”
Poofy vs. Inflamed and then…prednisone
Many weeks ago it was obvious I was in the throes of a flare. I had just had my Benlysta treatment and was not getting better. I was fatigued and swollen, and in pain. For weeks I had been taking lasix to get rid of extra water since I tend to retain a lot ofContinue reading “Poofy vs. Inflamed and then…prednisone”
Rain, rain go away
It’s been raining like cats and dogs in the NY Metro area and I, along with my other arthritic friends, are cursing mother nature. It’s a well known joke among people with joint problems that we can predict the weather based on how our joints feel. Even the Arthritis Foundation has a link to an “Arthritis Index”Continue reading “Rain, rain go away”
Workin’ out
I was going to be all organised about this blog by posting only once a week, but screw it…here’s another post today. Couldn’t wait… I don’t love working out, necessarily, but I had a good workout today. I felt productive. After feeling unable to work out for a few weeks because of a flare thatContinue reading “Workin’ out”
the invisible handicap and parking ‘shaming’
There was an article recently of a woman who has lupus, which makes her eligible to apply for a handicap parking tag/spot. She received a nasty letter on her windshield from someone who, thinking they were a good citizen, shamed her for stealing handicap spots from people who need them. The woman who received this note andContinue reading “the invisible handicap and parking ‘shaming’”
Giving Benlysta a chance
I got my Benlysta infusion this week. I’ve been on it for about three years and it’s been working out really well for me. What made me excited this week is there were two other people receiving the treatment in the infusion room with me. It’s exciting because we’re getting more doctors to prescribe and more patients to takeContinue reading “Giving Benlysta a chance”
the little wolf hunter 