It’s been about two weeks since my last post but I’m still here! My brain and my body have been less-than cooperative. I’ve continued to be fatigued and in pain. Turtle-mode is my new speed (which I do not like very much). Oh have I been wishing for teleportation! My energy is so low that moreContinue reading “Everything in slow motion”
Category Archives: lupus
Know your family history
I’ve always thought it was probably a good idea to know your family medical history, but until recently, it was never something to pay much attention to. Because of a family history of breast cancer, I had my baseline mammogram at age 35. After seeing an OB/GYN this year for a checkup, she recommended that I see a geneticContinue reading “Know your family history”
To my fellow spoonies
We deal with a lot and we probably don’t give ourselves enough credit
The decision cycle when your lupus isn’t stable
There is always a back-and-forth and a need to be flexible when you have lupus. Things change! I believe for many of us, there is a decision-making process that goes into many of our activities, especially when we are not feeling so hot. I was thinking about this over the past week or so asContinue reading “The decision cycle when your lupus isn’t stable”
Body image and lupus
Body image can go through a ‘loop’ when you have lupus (insert dorky giggle here). But seriously, I struggle with my self-image sometimes (which is a self-esteem issue unrelated to lupus), and when I was put on prednisone after being diagnosed, I hated how the side effects made me look. I felt frustrated because I couldn’t controlContinue reading “Body image and lupus”
The doctor-patient relationship
I took part in a twitter chat yesterday about patient-centricity. Several definitions were discussed, but they all described patient-centricity as a health system where the patient is the focus of care, where the patient’s world is taken into consideration, where collaboration is key. It’s an important concept that those of us with chronic illnesses eventually come toContinue reading “The doctor-patient relationship”
Employment by lupus- my story
I’ve learned different ways to manage my lupus while working, and I want to share my tips with you.
Living with lupus and living with(out) limits
There is a learning process for figuring out your ‘limits’. Not just when you are newly diagnosed, but also when your lupus changes!
The Women’s World Cup and wishing I could play
I’ve been watching the FIFA Women’s World cup going on now in Canada and having a great time watching it. I’ve been tweeting during games (@LittleWolfBlog), hootin’ and hollerin’ in my apartment during games and, while having fun, I am a little sad that I can no longer play soccer.
Pushing through!
I’ve been lucky enough to have never had really bad physical side effects with most of my meds…
the little wolf hunter 