If you’ve been wondering where I’ve for the past year+, well, I’ve been here. I would think about this blog often and think of ways to write about what’s been happening. In fact I have about 20 drafts waiting for me to finish and post. *sigh* So what’s been happening? Nothing much on the LUPUSContinue reading “Ever feel badly that you don’t feel badly? “
Category Archives: lupus
Revisit, revise, reset, renew (?)
It has been a long time since I’ve posted to my blog, and it is not for lack of things happening. That is not the case, at all. There has been A LOT going on in the background as it relates to dealing with lupus. As you may know, there is no cure for lupusContinue reading “Revisit, revise, reset, renew (?)”
Speaking of family
Having children is more complicated for those of use who have chronic illnesses…
Invisible Illness Awareness Week
Recently we had Invisible Awareness Week (September 26-October 2) and now we have Invisible Disabilities Awareness Week (October 16-22). While these are (probably) technically different issues, the fact that “what you see is not what you get” is getting some attention is a win for any of us who have them. I’m going to refer toContinue reading “Invisible Illness Awareness Week”
Thank you!
Since my last post, I found out that I was nominated for a WEGO Health Activist award for “Best Kept Secret”. This is very humbling and strange because I generally think no one knows about the little wolf hunter! I have no idea who nominated me, but it is really appreciated. It lets me know that I amContinue reading “Thank you!”
Can a bad thing can be the best thing for your health?
Again, it’s been a long time since I’ve posted here. My emotional energy has been so depleted for the past few months that I could never bring myself to share “doom and gloom” with you. In my last post, I shared a bit about a life change I was going through and trying to figure outContinue reading “Can a bad thing can be the best thing for your health?”
When the rug gets pulled out from under you
Sometimes when you’ve lived with a chronic illness for a long time you generally “know the drill”. It almost seems that even when things get a little wonky, you are somehow able to pull yourself together (my favourite keyword: ‘adjust’) to get back on track. The normal types of stresses are quickly identified: work getsContinue reading “When the rug gets pulled out from under you”
National Institutes of Health Releases Plan to Expedite Lupus Treatments and Cures
Source: National Institutes of Health Releases Plan to Expedite Lupus Treatments and Cures
When something new pops up…
It has been a long time since my last post. The usual busy schedules and health-related maintenance (and holidays) have kept me from writing posts that I feel ready to post. I want to share some of the recent issues I’ve encountered, so this will be my longest post to date (lucky you)! It shouldContinue reading “When something new pops up…”
I’m enjoying being involved in the bigger picture
Wow. I think it might be a month or so since my last post. While nothing really MAJOR has happened with me or my health, I’ve been trying to get more involved in lupus/patient events. I’m very interested in (obviously) lupus awareness and education, but I am also generally interested in making patient’s lives better.Continue reading “I’m enjoying being involved in the bigger picture”
the little wolf hunter 