life – Page 2 – the little wolf hunter

To my fellow spoonies

We deal with a lot and we probably don’t give ourselves enough credit

The decision cycle when your lupus isn’t stable

There is always a back-and-forth and a need to be flexible when you have lupus. Things change! I believe for many of us, there is a decision-making process that goes into many of our activities, especially when we are not feeling so hot. I was thinking about this over the past week or so asContinue reading “The decision cycle when your lupus isn’t stable”

The doctor-patient relationship

I took part in a twitter chat yesterday about patient-centricity. Several definitions were discussed, but they all described patient-centricity as a health system where the patient is the focus of care, where the patient’s world is taken into consideration, where collaboration is key. It’s an important concept that those of us with chronic illnesses eventually come toContinue reading “The doctor-patient relationship”

Employment by lupus- my story

I’ve learned different ways to manage my lupus while working, and I want to share my tips with you.

Living with lupus and living with(out) limits

There is a learning process for figuring out your ‘limits’. Not just when you are newly diagnosed, but also when your lupus changes!

Rain, rain go away

It’s been raining like cats and dogs in the NY Metro area and I, along with my other arthritic friends, are cursing mother nature. It’s a well known joke among people with joint problems that we can predict the weather based on how our joints feel. Even the Arthritis Foundation has a link to an “Arthritis Index”Continue reading “Rain, rain go away”

the invisible handicap and parking ‘shaming’

There was an article recently of a woman who has lupus, which makes her eligible to apply for a handicap parking tag/spot. She received a nasty letter on her windshield from someone who, thinking they were a good citizen, shamed her for stealing handicap spots from people who need them. The woman who received this note andContinue reading “the invisible handicap and parking ‘shaming’”

sometimes you need to slow down to move fast

I tend to walk fast. Maybe it is part of my ‘location DNA’ but even when I can’t move fast, I try. I’m a big-city girl, having grown up in Brooklyn NY, and I can’t imagine living anywhere else. Coming from NYC, everything moves fast. It really does. I rarely notice it unless I’m somewhereContinue reading “sometimes you need to slow down to move fast”