advocacy – the little wolf hunter

I’m enjoying being involved in the bigger picture

Wow. I think it might be a month or so since my last post. While nothing really MAJOR has happened with me or my health, I’ve been trying to get more involved in lupus/patient events. I’m very interested in (obviously) lupus awareness and education, but I am also generally interested in making patient’s lives better.Continue reading “I’m enjoying being involved in the bigger picture”

To my fellow spoonies

We deal with a lot and we probably don’t give ourselves enough credit

The doctor-patient relationship

I took part in a twitter chat yesterday about patient-centricity. Several definitions were discussed, but they all described patient-centricity as a health system where the patient is the focus of care, where the patient’s world is taken into consideration, where collaboration is key. It’s an important concept that those of us with chronic illnesses eventually come toContinue reading “The doctor-patient relationship”

Employment by lupus- my story

I’ve learned different ways to manage my lupus while working, and I want to share my tips with you.

the invisible handicap and parking ‘shaming’

There was an article recently of a woman who has lupus, which makes her eligible to apply for a handicap parking tag/spot. She received a nasty letter on her windshield from someone who, thinking they were a good citizen, shamed her for stealing handicap spots from people who need them. The woman who received this note andContinue reading “the invisible handicap and parking ‘shaming’”