the invisible handicap and parking ‘shaming’

There was an article recently of a woman who has lupus, which makes her eligible to apply for a handicap parking tag/spot. She received a nasty letter on her windshield from someone who, thinking they were a good citizen, shamed her for stealing handicap spots from people who need them. The woman who received this note andContinue reading “the invisible handicap and parking ‘shaming’”

Giving Benlysta a chance

I got my Benlysta infusion this week. I’ve been on it for about three years and it’s been working out really well for me. What made me excited this week is there were two other people receiving the treatment in the infusion room with me. It’s exciting because we’re getting more doctors to prescribe and more patients to takeContinue reading “Giving Benlysta a chance”

sometimes you need to slow down to move fast

I tend to walk fast. Maybe it is part of my ‘location DNA’ but even when I can’t move fast, I try. I’m a big-city girl, having grown up in Brooklyn NY, and I can’t imagine living anywhere else. Coming from NYC, everything moves fast. It really does. I rarely notice it unless I’m somewhereContinue reading “sometimes you need to slow down to move fast”